Spina Bifida Of Greater Saint Louis

Spina Bifida is one of the most devastating of all birth defects and it affects approximately one out of every 1,000 newborns in the Saint Louis area.  A neural tube disorder that is both genetically and environmentally determined, spina bifida can cause complex and serious health issues in numerous systems within the body. Children born with spina bifida may need multiple surgeries and other extensive medical care throughout their lifetimes to address orthopedic, urological, neurological and other issues. However, thanks to advances in medical technology, most children born with spina bifida today live well into adulthood and are thriving members of society.

If you would like to join our group or just find out more information, please fill out the Contact Us form. All existing members are highly encouraged to fill out the form each year to ensure that your information is kept up to date so we can get announcements, newsletters, etc.. to you.

  Bingo Night will be February 19, 2010. Check-in after 6:15 PM. Games begin at 7 PM. Beautiful baskets and pottery from Longaberger will be awarded for each of the 20 games played. Register by calling (314) 843-2244, (618) 377-9000 or emailing psabbott@charter.net. State names of participants and give one contact phone number. Everyone who pre-registers will be entered into an additional basket drawing. There is a $20 participation fee which can be paid on 2/19 at the door or reserving a table of 8 ahead of time by sending $160 in by February 10th to SBSTL, 8050 Watson Road, Ste 115, St. Louis, MO 63119. Bingo Night will be held at the Bethalto Senior Citizen Center, 100 E Central St, Bethalto, IL 62010.

  The Winter 2009 Newsletter has been published. Check it out!. Click here.

Important!!! Starting in 2010, the newsletter will only be published electronically. Hard copies can be made available for a small fee to cover printing and mailing costs. Please fill out the Contact Us page to update your email address

  The 2009 Latex List has been updated Click Here

  Check out some of our members with their new bikes Click Here

  If you are interested in hunting, fishing or archery, the Wheelin' Sportsman is for you. They are an outreach program for the National Wild Turkey Federation. Click here for further information.

  The Spina Bifida Genetics Research Project is enrolling participants in a study to determine if genetic variations in folic acid metabolism account for an increased risk of having a child with Spina Bifida. More information about the study is available at www.sbgenetics.org.

Support our local SBSTL through your charitable giving!

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