Missouri Links

Cardinal Glennon Hospital

Center for Innovations in Education

DASA - Disabled Athlete Sport Association

Missouri Planning Council for Developmental Disabilities 

Missouri Protection &Advocacy Services

Parent Link

Pediatric Neurosurgery at St. Louis Children's Hospital and Washington University School of Medicine

ShowMe Aquatics & Fitness

Shriners Hospital for Children - St. Louis

Spina Bifida of Kansas City

St. Louis Childrens Hospital

St. Louis Wheelchair Athletic Association

Support Dogs

UMKC Unstitue for Human Development, UCEDD

Illinois Links

DRM Regional Resources Directory

Illinois Spina Bifida Chapter (ISBA)

Illinois Provider Directory for Children with Special Health Care Needs & Their Families

Illinois Yellow Pages for Kids with Disabilities

Special Needs Network

Camp Links

Camp Ability

Camp Barnabas


National Sports Center for the Disabled

Wonderland Camp

Summercamp Safety Guide

Education & General Information Links

"If your family is welcoming a new baby born with Spina Bifida, or if you have been told that your unborn child has Spina Bifida, you probably have many questions and concerns, as do your extended family, friends, and neighbors. We have written this information keeping in mind our own diverse experiences when our children were born with Spina Bifida".  Welcoming Babies with Spina Bifida By Linda Rowley click here

American Syringomyelia Alliance Project, Inc ASAP

Brain Awareness Week at Washington University

Chiari Malformation

Cerebral Palsy Guide

Decreasing the Chance of Birth Defects

Disability Network


Exceptional Parent

Fetal Diagnosis and Therapy 

Fetal Surgery for Spina Bifida

Hydrocephalus Association

Hydrocephalus Center

Hydrocephalus Foundation

International federation for hydrocephalus & spina bifida (if)

Latex Allergy Links 

March of Dimes

My Spina Bifida Book

National Birth Defects Prevention Network

National Dissemination Center for Children with Disabilities (NICHCY)

National Council on Folic Acid (NCFA)

National Library of Medicine - National Institutes of Health

NINDS Chiari Malformation Information Page

Special Needs Project -- a unique disability bookstore

Teratology Society

World Arnold Chiari Malformation Association

Child Safety Links

The St. Louis County Police Department list on sex offenders

The Illinois State Police provides an online listing of sex offenders required to register in the State of Illinois.

KEEPING OUR CHILDREN SAFE - Polly Klaas Foundation